Design Superstore is proud to help children with this rare disease, MPS.
Leaving a legacy of hope for MPS families.
Our daughter, Jenna, passed away on January 2, 2017 after a life-long battle with a rare genetic disorder known as Mucopolysaccharidosis (MPS). After a bone marrow transplant at the age of 13 months, multiple surgeries, and numerous doctors’ visits, Jenna lived to be 19 years old. We were blessed to live close to doctors who could care for her. But not all families are as fortunate. Many travel hundreds of miles to see the few specialists in the country who are familiar with this rare disease. In addition, many can’t afford the medical equipment that is often needed to make their child’s life as comfortable as possible. For this reason, the Jenna Marie Richbourg Endowment Fund was established. This fund will provide financial support to those families within the MPS society who need assistance to cover travel expenses to visit doctors, purchase needed medical equipment or to possibly experience a once-in-a-lifetime extraordinary experience.
We would like to thank Chip and Joanna Gaines and the Magnolia Foundation for their generous gift, making Jenna’s endowment a reality.
-Keith & Sherri Richbourg
Rise up for MPS: A Vocal Majority Benefit Concert
Sat. Mar 2, 2019 at 7:00pm CST
100% of concert proceeds will go to the National MPS Society
For Tickets click here!